Meisyn Slideshow 8/26/2013

Meisyn's older sister Jaeya fractured her neck. The good news it is just the C6 vertebrae that is broken with no spinal cord involvement. So, we are a bit wrapped up in keeping Jaeya wrapped up right now.


Talented big sister Shayna put together a sweet slideshow of Meisyn. Enjoy seeing her smile through the last year!!!

HAPPY!!! BACK TO SCHOOL

NEW SCHOOL YEAR HAS STARTED!! 

TEACHERS GOT NEW DRAWINGS DECLARING MEISYN IS HAPPY.  WE WEREN'T SURE WE WOULD EVER SEE HER BACK TO SCHOOL.  CLAP ALONG!!

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We Can CHOOSE to DANCE!

Life is hard.  Its complicated.  Its disappointing.  Somehow a little girl who has never been able to stand has learned how to make her spirit continually dance.  In the hundreds of portraits she has drawn of herself she is always upright  .She has never drawn herself with legs that cannot stand or cannot walk. In her latest portrait she is dancing. Dance my girl...DANCE!

So when I am tempted to feel sorry for myself, be disappointed that at middle age some of my dreams didn't "come true", be weary that every day is a struggle to parent children, to feed my soul, I can CHOOSE to dance.  It is not my body, my environment, my bad luck that determines the happiness of my soul. IT IS MY CHOICE.  Meisyn embodies this truth. 
CAN YOU CHOOSE BETTER TOO?

Meisyn's Beach Bucket Blessing July 2013

Before you view, please find the pause button on the SCM Music Player link at the top of the blog. If you don't, you will have competing songs and frazzled nerves.

This is our "THANK YOU" from the Ellison's to all those who allowed Meisyn and our family to take a heart picture. We will carry this memory with such happy reflection. You have left your footprints on our family.

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Have you ever wondered how Miss Meisyn gets around with legs that she cannot move voluntarily? She has devised a way to get where she wants to go....dragging her legs by hooking them over her hands. Take a minute and watch her as she is determined to make it to the ocean of her own accord. She feels the surf for the first time in her life. Notice she leaves a MUCH BIGGER footprint in the sand than most people. The same way she leaves her footprints on people's hearts..

 

MEISYN, 7-year-old girl with rare disease, visits San Diego Zoo - San Diego, California News Station - KFMB Channel 8 - cbs8.com

7-year-old girl with rare disease visits San Diego Zoo - San Diego, California News Station - KFMB Channel 8 - cbs8.com
CLICK ON THE LINK TO VIEW THE VIDEO

SAN DIEGO (CBS 8) - "A special little girl crosses off an item on her bucket list at the San Diego Zoo.  Seven-year-old Meisyn Ellison was adopted from China last year and has been diagnosed with a rare and terminal form of muscular dystrophy.

Among the things she wanted to do was travel from her home in Utah to San Diego to see the animals at the zoo. Her wish came true Tuesday and she even got to help feed the elephants.
Meisyn is capturing and saving all her memories on her iPod and her mother is documenting her experiences on a blog. Click here to visit her blog."

Yes, Meisyn was able to check off "Help Zoo Animals" on her Sand Bucket List!!!  We were overwhelmingly blessed by donations from many friends to get Meisyn and 13 SIBLINGS and nephew to Southern California where they serve carne asada french fry plates the size of your head.  

There they were greeted by the staff at the Otay Best Western in Chula Vista who donated a room for two nights and kindly reduced the rates for the other rooms.  In the breakfast room was a banner welcoming MEISYN and the ELLISON FAMILY to their hotel.  Huge thanks to manager Victor and special Meisyn auntie Melissa Baldwin for providing this.

Meisyn could hardly wait to get to the zoo but then was knocked giddy to learn that she would be followed by a local news crew.  Being on TV was a Sand Bucket Item she had never even thought of but got to experience!! The day got even better as she was able to join Krissy, Shaba the elephant's trainer, in the feeding pen.

 Meisyn was stunned to learn that taking care of animals could be a JOB....a REAL JOB.  She clapped her hands and queried the trainer, "IF I grow up, can I come back and have a job with you?"  I believe the "IF" instead of "WHEN" caught Krissy off guard but she regained her composure and gave Meisyn a hearty, "Of course!!  You come help me any time".  Kisses to Shaba were blown in the wind and Mama's heart took a picture.

 Auntie Melissa and Meisyn enjoyed the Sky Ride.  They are close buddies now.  Can't wait for Ben to get home to join his Mama Melissa and family.  We have so much fun waiting  ahead of us together.

One, Two, WE LOVED THE ZOO!!

Beauty of the Broken Butterfly

Meisyn officially asked Make A Wish last week to "FLY WITH THE FAIRIES".  She longs to be part of the girls in Pixie Hollow and be best friends with beloved Tinkerbell.  As if to give her a wink that this was indeed meant to be, a YELLOW butterfly with PURPLE markings crawled into Meisyn's hands this week.  Not just any magnificent butterfly, but a magnificent BROKEN butterfly who could no longer fly.  Perhaps a symbol of the union of a yellow haired fairy and a purple loving little girl whose wings have also been clipped?  (Note: it is the PURPLE part that is broken)

Meisyn was afraid to touch the butterfly.  So fragile.  So delicate. So outside her comfort zone.  Frankly, so scary.  Sometimes this is how people feel about Meisyn and her broken body too.  They are nervous to touch her when they first meet.  Tentatively she reached out with her weak and crippled fingers and let it tiptoe up her hands.

My dear Meisyn, may you continue to be brave, to try new things, to look for the symbols of hope around you.  Continue to value and cherish the broken things and teach the rest of us to do the same.  May you get that wish to FLY WITH TINKERBELL AND THE FAIRIES.  "It's in the moment your wings grow and you'll let go when you fly with me. Let your heart believe dreams can take you anywhere if you just set them free when you're true to who you are. You will always find your star.  All the wonders you will see when you fly with me."

 Full lyrics of FLY WITH ME from Tinkerbell

There is magic everywhere
In the air you breathe
It's true for every living thing
Why flowers bloom and all birds sing
It's in the voice that guides you on
The light that leads you home
It's in the moment your wings grow
And you'll let go

When you fly with me
Let your heart believe
Dreams can take you anywhere
If you just set them free
When you're true to who you are
You will always find your star
All the wonders you will see
When you fly with me

Paint a rainbow in the sky
Dance on every cloud
The world below is beautiful
Keep it like a precious jewel
Put a smile upon the sun
it shines for everyone
Sing the moon a lullabye every night

When you fly with me
Let your heart believe
Dreams can take you anywhere
If you just set them free
When you're true to who you are
You will always find your star
All the wonders you will see
When you fly with me

You'll find your place
Just take a leap of faith

When you fly with me
Let your heart believe
Dreams can take you anywhere
If you just set them free
When you're true to who you are
You will always find your star
All the wonders you will see
When you fly with me
Wonders will never cease when you fly with me

I'm Sorry Sister Lan

When "I'm sorry" doesn't make it better, Meisyn resorts to  love notes